Rosalynn Carter, the wife of former President Jimmy Carter and a longtime mental health advocate and humanitarian, died on Nov. 19, 2023. She was 96. The former first lady worked for decades to promote the dignity and self-worth for people living with mental illnesses.

Mrs. Carter was the nation’s leading mental health advocate for more than half a century — first in the Georgia governor’s mansion, then in the White House and later at the Carter Center.

"One in 10 older Americans have dementia, a condition that affects overall mental health," a May 2023 statement from the Carter family said, after announcing Mrs. Carter had dementia. "We recognize, as she did more than half a century ago, that stigma is often a barrier that keeps individuals and their families from seeking and getting much-needed support.

"We hope sharing our family's news will increase important conversations at kitchen tables and in doctor’s offices around the country."

Mrs. Carter's efforts made her an incomparable advocate during her lifetime, whether building houses for Habitat for Humanity or fighting guinea worm or advocating on behalf of people living with mental illness.

Here are a few of Mrs. Carter's achievements:

Rosalynn Carter works in her office at the White House.
Caption

Rosalynn Carter (right) works in her office at the White House, where she established the Office of the First Lady from 1977 to 1981.

Credit: Jimmy Carter Library

1977: Expanding the role of first lady during and after the White House

A mother of four, she was the first to establish an official 'Office of the First Lady' in the East Wing of the White House in 1977, and the first to hire a chief of staff with a rank and salary commensurate with that of other White House staff. When the Carter Center was established in 1982, she contributed to its areas of focus, including mental health, peace and democracy, women's rights and eradicating diseases.

1980: Advocating to reduce the stigma of mental health 

For over 50 years, Mrs. Carter worked to promote the dignity and self-worth for people living with mental illnesses. She was a member of the Governor's Commission to Improve Services to the Mentally and Emotionally Handicapped when Jimmy Carter was governor of Georgia. As active honorary chair of the President's Commission on Mental Health during her time in the White House, she helped bring about passage of the Mental Health Systems Act of 1980. At The Carter Center, she created the Center's Mental Health Program and established a Mental Health Task Force.

Rosalynn Carter chairs a meeting in Chicago, IL. for the President's Commission on Mental Health.
Caption

Then-first lady Rosalynn Carter chairs a meeting in Chicago for the President's Commission on Mental Health in 1977.

Credit: Courtesy of the National Archives

1982: Co-founding the Carter Center with Jimmy Carter

The Atlanta-based Carter Center has helped to improve the quality of life for people in more than 80 countries. The Center, in partnership with Emory University, is committed to advancing human rights and alleviating unnecessary human suffering.
 

1987: Founding the Rosalynn Carter Institute for Caregivers

As the founder of the Rosalynn Carter Institute for Caregivers in 1987, Mrs. Carter often noted that there are only four kinds of people in this world: those who have been caregivers; those who are currently caregivers, those who will be caregivers, and those who will need caregivers.

The Carter Center's May 30 announcement about Mrs. Carter's dementia mentioned caregiving:

"The universality of caregiving is clear in our family, and we are experiencing the joy and the challenges of this journey. We do not expect to comment further and ask for understanding for our family and for everyone across the country serving in a caregiver role."

A statue of Rosalynn Carter
Caption

A life-size statue of former first lady Rosalynn Carter sits at the health and human sciences complex at Georgia Southwestern State University that is named for her.

Credit: File Photo

1995: Founding the Rosalynn Carter Georgia Mental Health Forum

The forum, established in 1995, is held each May to address a timely mental health policy issue facing the state.

 

1996: Founding the Rosalynn Carter Fellowships for Mental Health Journalism

Hundreds of journalists have participated in the program, which was founded in 1996 by the former first lady to give journalists the resources they need to report on mental health — one of the world’s most underreported health issues — and to help dismantle through storytelling the stigma that millions of people face every day.

Former first lady Rosalynn Carter opens the annual Rosalynn Carter Symposium on Mental Health Policy in November 2000, when she was awarded the Surgeon General's Medallion for her leadership in the field of mental health.
Caption

Former first lady Rosalynn Carter opens the annual Rosalynn Carter Symposium on Mental Health Policy in November 2000, when she was awarded the Surgeon General's Medallion for her leadership in the field of mental health.

Credit: The Carter Center

2001: Recognition for supporting women's rights

Born on the seventh anniversary of the ratification of the 19th Amendment, Mrs. Carter has always been a fervent supporter of women's rights and, along with former first lady Betty Ford, was a vocal leader in the fight to pass the Equal Rights Amendment. In recognition of her tireless fight for mental health and unwavering dedication to improving the lives of others, she was inducted into the National Women’s Hall of Fame in 2001, becoming only the third first lady ever inducted, joining Abigail Adams and Eleanor Roosevelt.

In recognition of her tireless fight for mental health and unwavering dedication to improving the lives of others, Rosalynn Carter was inducted into the National Women’s Hall of Fame in 2001, becoming only the third first lady ever inducted, joining Abigail Adams and Eleanor Roosevelt.
Caption

In recognition of her advocacy for mental health care and dedication to improving the lives of others, Rosalynn Carter was inducted into the National Women’s Hall of Fame in 2001, becoming only the third first lady ever inducted.

Credit: File

2007: Advocating in Washington, D.C.

On July 10, 2007, Rosalynn Carter testified before a U.S. House of Representatives subcommittee in favor of the Wellstone Domenici Mental Health Parity and Addiction Equity Act, calling for mental illnesses to be covered by insurance on par with physical illnesses. Mrs. Carter's active leadership in the field of mental health has helped bring this topic to national prominence as a vital component of overall health and wellness.

2019: Hosting the Rosalynn Carter Georgia Mental Health Forum at age 91

Mrs. Carter spoke at the 24th annual Rosalynn Carter Georgia Mental Health Forum at the Carter Center in Atlanta in May 2019. This year's forum was held May 18 at the Carter Center, although Mrs. Carter was unable to attend.